I originally set this blog up thinking it would be a short term way to share information. If you have been following to this point you now know we are in a battle against ULMS Sarcoma (Google it). I will continue to post information on Crescence's progress as well as our state of mind and any needs we may have. Everyone has been so kind and generous from family and close friends to neighbors we barely know. The lawn has been mowed, our refrigerator filled, and our spirit renewed.
Tuesday, May 14, 2019
Could've! Would've! Should've!
We don't want these three words to haunt us but they just might. We just got back from a soggy Seattle and a visit with our fabulous Dr. Heidi Gray. As she suspected, the pathology from Crescence's 2015 hysterectomy was positive for ULMS. While we can't blame the gynecologist for missing this, we are bothered that the pathologist didn't make the right call back in 2015 so we could've, would've, and should've done something different. However, he didn't and there is nothing we can do to change the past - we just keep swimming. And if you haven't seen, or maybe forgotten, here is the scene from Finding Nemo that explains the "Just Keep Swimming" reference.
So here is the plan of attack. Crescence will begin 18 weeks of doxorubicin hydrochloride chemotherapy. They hope to start in the next week or two which will happen in six cycles that are three weeks apart. The side effects for this chemo are a mile long so if you really need to know there is this really cool tool on the Internet called Google. There is also a much lesser cool tool called Bing. Either way you get the point. However, there is one side effect that everyone wants to know about - Yes she will lose all her hair. Seriously, all of it so please don't anyone say to her, "Oh honey, you never know, you might be the lucky one." If you tell my wife this lie I will... I will.... I can't say what I will do because this is a family friendly blog.
This is just the short term plan . The long term plan is a complete cure. For this kind of cancer doctors don't like to give a prognosis as it is too unpredictable. Statistic are just numbers while Crescence is a person - a beautiful and strong person. We won't get caught up in survivor statistics because, right now, she is the only ONE that matters and we are going for 100% survivor rate for her. To ensure the ULMS is gone and doesn't come back she will undergo CAT scans of her torso midway through chemo, at the end of chemo, and then once every three months for two years. After that they go down to once every four months, once every six months until she has five years being cancer free. At that point she is technically cured. However, with sarcomas there's always a chance of them coming back, so she will get scans every year for the rest of her long and happy life just to be sure.
Again, we thank everyone for their support and prayers. The lawn is getting mowed, Craig is doing double duty at school, Rhonda is overseeing state testing and countless people have our backs in many other ways. My mother and brother were laid to rest this last weekend and dad is now in a retirement home so that phase is almost behind us. I leave you all with this picture of a special pair of bracelets my sister, Catrina, gave to Crescence and I this weekend.
Thank you so much for continuing this blog. What a good description of the journey ahead and know that there are so many people sending you prayers and positive thoughts as Crescence goes through this healing stage. Love the bracelets!
You are such a strong person Cresence and you have that crazy clown (yes..Halloween pun intended)🤡 cheering you on! Stay strong and fight...we are ALL cheering and praying for you guys! Love ya lots...ps... those bracelets are awesome! 💕🙏
Keeping you all in my prayers. If there is anything I can do to help, please let me know. I hope God blesses the hands of the doctor and nurses that address Cresence health care.
Irrespective of receiving daily oral or future injectable depot therapies, these require health care visits for medication and monitoring of safety and response. If patients are treated early enough, before a lot of immune system damage has occurred, life expectancy is close to normal, as long as they remain on successful treatment. However, when patients stop therapy, virus rebounds to high levels in most patients, sometimes associated with severe illness because i have gone through this and even an increased risk of death. The aim of “cure”is ongoing but i still do believe my government made millions of ARV drugs instead of finding a cure. for ongoing therapy and monitoring. ARV alone cannot cure HIV as among the cells that are infected are very long-living CD4 memory cells and possibly other cells that act as long-term reservoirs. HIV can hide in these cells without being detected by the body’s immune system. Therefore even when ART completely blocks subsequent rounds of infection of cells, reservoirs that have been infected before therapy initiation persist and from these reservoirs HIV rebounds if therapy is stopped. “Cure” could either mean an eradication cure, which means to completely rid the body of reservoir virus or a functional HIV cure, where HIV may remain in reservoir cells but rebound to high levels is prevented after therapy interruption.Dr Itua Herbal Medicine makes me believes there is a hope for people suffering from,Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Lupus,Lymne Disease,psoriasis,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Brain Tumor,Fibromyalgia,Fluoroquinolone Toxicity Syndrome Fibrodysplasia Ossificans ProgresSclerosis,Alzheimer's disease,Adrenocortical carcinoma Infectious mononucleosis. .Asthma,Allergic diseases.Hiv_ Aids,Herpe ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease, Dementia.(measles, tetanus, whooping cough, tuberculosis, polio and diphtheria),Chronic Diarrhea, Hpv,All Cancer Types,Diabetes,Hepatitis,I read about him online how he cure Tasha and Tara so i contacted him on drituaherbalcenter@gmail.com / . even talked on whatsapps +2348149277967 believe me it was easy i drank his herbal medicine for two weeks and i was cured just like that isn't Dr Itua a wonder man? Yes he is! I thank him so much so i will advise if you are suffering from one of those diseases Pls do contact him he's a nice man.
Thank you so much for continuing this blog. What a good description of the journey ahead and know that there are so many people sending you prayers and positive thoughts as Crescence goes through this healing stage. Love the bracelets!
ReplyDeletePrayers are with you! Love you guys! ❤️
ReplyDeleteYou are such a strong person Cresence and you have that crazy clown (yes..Halloween pun intended)🤡 cheering you on! Stay strong and fight...we are ALL cheering and praying for you guys! Love ya lots...ps... those bracelets are awesome! 💕🙏
ReplyDeleteYes. Just keep swimming. Sending prayers and intentions your way
ReplyDeleteWe are thinking and praying for you guys!
ReplyDeleteIt's a good thing I was a swim instructor and lifeguard, so I can help you swim, sister! ;)
ReplyDeleteLove you guys you got this will keep praying and thinking about you.
ReplyDeletejust keep swimming ������
P.S Couldn't find Nemo or Dory emojis hope this is ok ��
Keeping you all in my prayers. If there is anything I can do to help, please let me know. I hope God blesses the hands of the doctor and nurses that address Cresence health care.
ReplyDeleteIrrespective of receiving daily oral or future injectable depot therapies, these require health care visits for medication and monitoring of safety and response. If patients are treated early enough, before a lot of immune system damage has occurred, life expectancy is close to normal, as long as they remain on successful treatment. However, when patients stop therapy, virus rebounds to high levels in most patients, sometimes associated with severe illness because i have gone through this and even an increased risk of death. The aim of “cure”is ongoing but i still do believe my government made millions of ARV drugs instead of finding a cure. for ongoing therapy and monitoring. ARV alone cannot cure HIV as among the cells that are infected are very long-living CD4 memory cells and possibly other cells that act as long-term reservoirs. HIV can hide in these cells without being detected by the body’s immune system. Therefore even when ART completely blocks subsequent rounds of infection of cells, reservoirs that have been infected before therapy initiation persist and from these reservoirs HIV rebounds if therapy is stopped. “Cure” could either mean an eradication cure, which means to completely rid the body of reservoir virus or a functional HIV cure, where HIV may remain in reservoir cells but rebound to high levels is prevented after therapy interruption.Dr Itua Herbal Medicine makes me believes there is a hope for people suffering from,Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Lupus,Lymne Disease,psoriasis,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Brain Tumor,Fibromyalgia,Fluoroquinolone Toxicity
ReplyDeleteSyndrome Fibrodysplasia Ossificans ProgresSclerosis,Alzheimer's disease,Adrenocortical carcinoma Infectious mononucleosis. .Asthma,Allergic diseases.Hiv_ Aids,Herpe ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,
Dementia.(measles, tetanus, whooping cough, tuberculosis, polio and diphtheria),Chronic Diarrhea,
Hpv,All Cancer Types,Diabetes,Hepatitis,I read about him online how he cure Tasha and Tara so i contacted him on drituaherbalcenter@gmail.com / . even talked on whatsapps +2348149277967 believe me it was easy i drank his herbal medicine for two weeks and i was cured just like that isn't Dr Itua a wonder man? Yes he is! I thank him so much so i will advise if you are suffering from one of those diseases Pls do contact him he's a nice man.